Living And Dying With Dementia: Barriers To Care

Dementia sufferers are not getting the care they need because the condition is not recognised as a terminal illness, two leading charities have claimed.

A report by Marie Curie Cancer Care and the Alzheimer’s Society said dementia sufferers faced barriers to receiving the high-quality care they require:

Living and dying with dementia in England: Barriers to care

The report draws on research from across the UK and particularly from University College London (UCL), as well as findings from health and social care services. Following its publication, Marie Curie and Alzheimer’s Society is aiming to bring together NHS organisations, social care bodies, royal colleges, charities, researchers, and people with experience of dementia and end of life care, to plot out how to address the barriers and develop an action plan that each organisation can to sign up to.

The three main barriers that prevent many people from accessing appropriate high-quality care at the end of their lives include:

  • Inadequate Quality of Care
  • Identification and Planning
  • Inequality of Access


COTS 2024