People shouldn’t be ignored at the end of their life, says Sue Ryder
Research reveals many people’s wishes and preferences at end of life are still not being heard. Too many people are not given the opportunity to discuss how and where they’d like to be cared for in their last few months and days of life, according to Sue Ryder’s ‘Ways and means’ report.
In response, Sue Ryder launch end of life care tool designed to improve person-centred care and calls for more action to meet patient needs.
The tool is available for free download at http://progressforproviders.org/checklists/progress-for-providers-end-of-life/
In Sue Ryder’s recent report, Ways and Means’, an overwhelming majority of hospice users said they had only ever discussed what they wanted with family and friends and not health professionals. They were therefore unsure whether their wishes and preferences were recorded and understood by health professionals delivering their care.
In response to these findings, Sue Ryder – in partnership with Helen Sanderson Associates, Hull City Council and St Ann’s Hospice – has developed an end of life self assessment care tool. The tool shows what good end of life care should look like through a series of comprehensive and evidence-based prompts and suggestions.
Health and social care professionals can use the tool to check that the care they are providing is tailored to their dying patient’s individual needs and wishes in their anticipated last year of life, as well as use to see how they can develop, improve and measure their current care provision.
The tool is designed with the patient’s needs at the forefront ensuring a ‘person-centred’ approach as opposed to focusing on a general end of life care method or pathway.
The vital need for health and social care professionals to get the care for dying patients right is becoming increasingly evident in light of an ageing population; the number of deaths per year is due to outnumber the number of births by 2030, rising by 17% to 590,000. Recent recommendations for the Liverpool Care Pathway (LCP) to be phased out and a more person-centred approach applied to end of life care plans also highlight this need.
The self assessment tool, entitled “Progress for Providers – end of life care” is being launched at the Help the Hospices 2013 annual conference (at stand number 6) in Bournemouth on 23 October.
Person-centred care is at the heart of everything we do at Sue Ryder. We hope that health and social care professionals will use this tool to enable their patients to get the care they need and want at the end of their lives. As we await developments regarding the use of the LCP, it is vital that everyone involved in delivering end of life care examines how their current provision can be improved. This is why we are calling for the wishes and preferences of people near the end of their lives to be given much greater prominence across the health arena.
Paul Woodward, CEO at Sue Ryder
Delivering choice and personalised care for people at the end of their lives is dependent on robust and proactive systems for communicating them, understanding their preferences and recording them in a way that is easily understood by all those with whom they come into contact. Without this, the dying person is far more likely to have a bad end of life care experience and we must do all we can to avoid this.
Phillip Ball, Palliative Care Services Manager at Sue Ryder
What does personalisation look like at end of life care? This latest in the Progress for Providers’ series was developed with managers and health and social care practitioners and demonstrates how person-centred practices can be used at end of life to deliver personalisation. For people at the end of their life, they can be assured that their care is as personalised as possible offering greater choice and control.